If you think you have ODS, you should speak with your physician. You can be an active member of your own healthcare team, and to do so you must obtain information that allows you to make wise decisions. Having open, honest conversations with your doctor is the best way to ensure this.

Research shows that patients who have good relationships with their physicians tend to be more satisfied with their care.²  Below are some tips that may help make conversations with your doctor as productive as possible.

• Give information. Provide your physician with as much information as possible of your lifestyle. Share details, such as diet, exercise and sleeping habits, and concerns related to bodily functions. Do not be embarrassed about discussing sensitive subjects. Your doctor is a trained professional who will not be surprised and will not intentionally make you uncomfortable.
• Know your health history. Keep an updated list of health information and bring it to your doctor appointments. Tell your doctor about any medications you are taking, their doses, and when you take them. Your doctor also will want to know if you are using any type of alternative medical care such as herbal products or enemas.
• Explain how you feel physically and emotionally. Keep track of when certain symptoms are at their worst. Using the Personal Journal will help you remember specific details.
• Ask questions. If you don’t ask questions, it is possible your doctor will think you understood everything. If you have questions before your visit, write them down so you do not forget.
• Ask again. If you do not understand something your physician said, ask your question again. You also may ask your physician to explain it in another way or draw a picture.
• Collect information. When talking to your doctor, take notes or record your conversation. Or, use the buddy system — take someone with you to the appointment. That way more than one person can ask questions and retain information.
• Remember the nurse. Nurses are tremendous resources and often are available to provide information, answer questions, or return phone calls.
• Inform your doctor. Because ODS is not common, your family doctor may be unfamiliar with the condition. If this is the case, do not be discouraged. Download the brochure to share, and give your doctor an opportunity to do his/her own research.